Some thoughts about Dupilumab We all need input from patients who have been taking or took the drug. Information on patients on the drug has not been forthcoming. Tell us if you have had good results or no results. Yes, this is anecdotal, but we need some direction. The drug is extremely expensive - why? [...]
A cured steroid addicted RSS patient forwarded the most recent advertisement from ITSAN to me. It is a call for patients to sign on to a study of RSS patients in Australia. It must be clarified for ITSAN that in appropriate medical parlance you do studies and lab tests when you do not have an [...]
A physician, Tim Berger, presented a poster at the recent March, 2017, Academy of Dermatology meeting. In essence he implies that he discovered TSA, TSW and RSS with the caveat that these patients itch. It is evident that he never saw any of the patients, since this was only a survey from the internet. The [...]
The following are comments by Marvin Rapaport MD, owner of this website, Red Skin Syndrome, and edited and clearly written by an esteemed writer and journalist, Ruchy Reese, who writes for the monthly magazine, Wellspring. I am writing in response to an article that appeared in the December 15, 2016 edition of the New [...]
November 17, 2016 Bruce H. Thiers, MD c/o Detra Davis, Managing Editor Journal of the American Academy of Dermatology 930 E. Woodfield Rd Schaumburg, IL 60173 Re: Ethics in Drug Studies To the Editor: Dupilumab (JAAD 2016, 75; 506-516) by Simpson et al has three glaring ethical concerns: Protocol: There is no mention [...]
Dermatologists around the world practice their medicine in two separate domains. One major area is the treatment of disease and the other is the realm of anti-aging and beauty. Each discipline offers medications and procedures. Prices for anti-aging treatments are high despite most of them having questionable value. Prices for drugs treating diseases have skyrocketed. [...]
Dear Dr. Rapaport, I am profoundly grateful to you. I am writing to express my admiration and deep appreciation for your commitment to uncovering the existence of steroid induced eczema (Red Skin Syndrome) and your willingness to state publicly and candidly that the cure for RSS is total and complete withdrawal from steroids. My husband [...]
My “White Paper” (Blog 28) issues a challenge to all involved in caring for the community of suffering TSA patients to change their misguided course. All the dermatologists and practicing physicians, all the patient support groups, all the eczema societies, all the editors and peer reviewers of the journals in which my papers were published, [...]
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