Here's a new comment on Dupilumab. Patient 1: A 20ish healthy male with life-long use of steroids for eczema and with resultant RSS is admitted to the hospital for nearly 4 weeks to have various forms and strengths of steroid creams and oral medication to be applied to the whole body. Then, once he is [...]
I take a detour today from many more Dupilumab stories by concentrating on a new ITSAN appeal for donations over the heading "I wish I would have known (about steroids)." The implications of this new campaign are that it is an evil drug. Steroid creams used properly in the proper strength for the correct amount [...]
Something is peculiar with the new drug Dupilumab and its marketing. Patient 1 - a moderately symptomatic RSS patient, functioning fairly well, received a near 3 page letter from his dermatologist to take the new 'wonder drug' Dupilumab. The letter contained all kinds of compliments for the drug and the doctor has probably had little [...]
All addicted people (not patients yet), whether it be opioids, amphetamines, alcohol, or steroid creams - all have the same comment - "I'm only using a little," "I can stop anytime," "I am not addicted," "Leave me alone." There is always a hint of anger in their comment because you might take away their 'fix.' [...]
I thought that with the slowing down of the flow of new patients during December that we were reaching a better position for all the suffering RSS patients. But, no, that was not to be; one patient from the hospital sent me a U-tube telling me of her abject severe pain and the hospital doctors [...]
Some thoughts about Dupilumab We all need input from patients who have been taking or took the drug. Information on patients on the drug has not been forthcoming. Tell us if you have had good results or no results. Yes, this is anecdotal, but we need some direction. The drug is extremely expensive - why? [...]
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