Red Skin Syndrome: Stop The Suffering

A continual avalanche of new and long-suffering “eczema” patients who have found me over the Internet has prompted me to begin a new website and daily blog. The simple fact is that these patients are unique and identifiable through many simple and time-tested methods. They do NOT have eczema but instead are manifesting symptoms of another kind.

The doctors that these patients have seen believe that they are treating chronic eczema when indeed they do not recognize that their patients have severe vasodilation and redness from the steroids that they themselves are prescribing! Their patients have developed Red Skin Syndrome (RSS) and a topical steroid addiction (TSA) from using the increasing amounts and strengths of the corticosteroids prescribed to help them.

The time has come for eczema societies and physicians to stop exposing these patients to dangerous misguided therapies.

I will dismiss detrimental recommendations, invalid explanations, and other faulty advice and on the part of many physicians.

I will discuss the appropriate methods to make the right diagnosis that will lead to a CURE for Red Skin Syndrome.

The blog will be based on my life experience and medical practice solving the problem of Red Skin Syndrome one patient at a time over the past 35 years. The content of each blog will address a specific topic in the scientific understanding of Red Skin Syndrome and the ordeal of topical steroid addiction that so many patients continue to experience. There will be ongoing commentary on the misdirected myths and the often misguided medical advice and therapies that exist on the topic including raising caution about enlisting patients into new drug studies that are treating the wrong diagnosis and can potentially cause even more harm to patients.

My goal is to end the current tragedy of needless patient suffering. It may take the patient months or even years to recover but the reward is a lasting cure.

DIAGNOSES & DERMATOLOGICAL TERMS CONCERNING ‘RED’ PATIENTS

  • Red Skin Syndrome
  • RSS (Red Skin Syndrome)
  • TSA (Topical Steroid Addiction)
  • Steroid Addiction
  • Steroid Withdrawal
  • Eczema
  • Atopic Dermatitis
  • Red Scrotum Syndrome
  • Vulvodynia (Painful & burning in the vulvar area of women)
  • Atrophoderma (Thinning of the skin)
Marvin Rapaport is the man!, this group wouldn’t exist without his work, no-one would even be aware of the condition if it wasn’t for his expert knowledgable and dedication… He’s the best dermatologist to go to about this. Should be given a medal for all the suffering he’s ended as a result of his discoveries. No one else understands this condition more than he does.
Douglas Maddy
Thank you from the bottom our families hearts for the work you do and the help you provide Rss sufferers. My daughter is fully healed and would never be living the like she is now with out the Rss community and your involvement in that. Today she turned 7 and has perfect skin and is able to enjoy being eczema free.
Kirsten Lyle
Despite lectures to dermatologists and papers published in the most prestigious Dermatology journals, the mainstream medical community will not accept the concept that it is their medical therapy that causes and promotes Red Skin Syndrome. Instead, they continue to mislabel the disorder and insist that “chronic eczema” is an incurable condition. I am determined through my blog, the media, and the numerous cured patients to take this concept into mainstream thinking.
Listening to my patients, understanding their plight, adhering to the sound tenets of my medical training, and abiding by the wise counsel of my mentors to embrace new ideas is the way to practice good medicine.
The blog will be based on my life experience and medical practice solving the problem of Red Skin Syndrome one patient at a time over the past 35 years. The content of each blog will address a specific topic in the scientific understanding of Red Skin Syndrome and the ordeal of topical steroid addiction that so many patients continue to experience.
My goal is to eradicate Red Skin Syndrome by curing those suffering RSS patients with whom I have personal contact and by spreading this science to all those who are too distant via technology.
The man who goes alone can start today; but he who travels with another must wait until that other is ready, and it may be a long time before they get off.

― Henry David Thoreau

Latest From The Blog

Every three or four days I will publish new commentary on the blog. Drawing on 35 years of experience treating patients suffering with Red Skin Syndrome I will include an array of patient histories, photographs, patient stories in their own words, appropriate comments from the dermatology literature, and details on physicians in the world who understand this problem and are willing to help. I know that you will find yourself and your tale on these pages and I am confident that you will find the cure that will end your suffering. Every patient that I have seen, over 3,000 in 35 years, has been cured or is on the road to recovery. I look forward to this adventure together.

New Ideas

By | June 26th, 2017|Categories: Uncategorized|

Dr. John Sarno, 93, Dies; Best-Selling Author Tied Pain to Anxieties.

Like anyone in medicine, he did not have ALL the answers, but he had many. He is a true champion who listened to his patients, learned from them, and helped others because of them. He left the basic science research to others who proved many of his ideas to be correct. There are many examples of this in my own life.

I have a friend in Los Angeles, Dr. Marvin Rapaport, who is a dermatologist and treats “Red Skin Syndrome”. A painful itchy disease of the skin. Most Dermatologists treat this with topical steroids, which helps for the moment, but makes things worse in the long run. He posits that the steroids are part of the problem, and not the solution. He can cure the patients by removing ALL STEROIDS from their treatment regimen. The patients are miserable for days to weeks to months, but most are ultimately cured! Hopefully, one day, the medical community will come around.

My father was laughed at when, as a general surgeon, he would get his patients out of bed the day after surgery for intestinal and gall bladder removal. EVERYONE knew that a patient […]

Eucrisa – A New Cream For Eczema

By | April 19th, 2017|Categories: RSS|

A new topical medication, Eucrisa, for treating eczema has recently been approved by the FDA. With keen interest I read every word of the backup study and publication in the Journal of the American Academy of Dermatology concerning then named Opa-15406, a novel topical non-steroidal PDE4 inhibitor. The study included patients who had just recently stopped steroid usage but for only a short period of time. This makes me question the results of the study and the supposed efficacy of the medication.

In over 40 years of being the principal investigator in scores of drug studies I never seen nor participated in any study where both active and placebo groups ‘dropped out’ without any ready explanation. In the fine print of this study 25% of all subjects vanished. In any well-groomed, appropriately protocol proven study less than 2 or 3 patients drop. Why was there a huge percentage dropping out of this study? I strongly believe they were all steroid addicted patients, not true eczema and were in flares of their addiction.

This paper had charts, bar graphs, tables and numerous statistics that I found both confusing and totally misleading. Basically, in dissecting the data […]

Academy Of Dermatology Poster

By | April 17th, 2017|Categories: RSS Patients|

A physician, Tim Berger, presented a poster at the recent March, 2017, Academy of Dermatology meeting. In essence he implies that he discovered TSA, TSW and RSS with the caveat that these patients itch. It is evident that he never saw any of the patients, since this was only a survey from the internet. The poster was based upon survey information gathered in a very unscientific manner but made to look good with statistics. Poor data in gives poor data out. The reference section failed to mention my 37 years in personally treating, managing and curing 4000 patients. Nor did he cite my published papers.

Self-aggrandizement and plagiarism have no place in medicine especially when it brings to benefit to the suffering patients. The survey was conducted by an organization that continually asks for donations. This money could be better spent getting medical care for patients rather than telling us that they itch. This doctor needs to find another field to attain fame.

Questionable points made in the poster:

  1. The National Eczema Association saying that this entity is rare.
  2. Money spent to tell us that these […]

Dupilumab Study – Subject Patient Comments

By | April 6th, 2017|Categories: Dupilumab|

The Dupilumab studies were 16 weeks long. This is a very short time to truly evaluate a drug in this very difficult and prolonged skin problem. In addition, there were no objective comments on rash, redness, skin oozing, edema and pain. There are no long term follow ups reported.

But:
Links to patient comments after the study was completed, I have found to be mostly negative. Many patients are still using steroids. Was it worth being in the study?

Stop the steroids.

See the links to patient comments below:

LINK 1: http://www.inspire.com/groups/national-eczema-association/discussion/dupilumab-2/

LINK 2: https://www.inspire.com/groups/national-eczema-association/discussion/dupilumab/?origin=mtr&page=3#replies

LINK 3: http://forum.itsan.org/index.php?topic=4679.msg42589#msg42589

LINK 4: http://forum.itsan.org/index.php?topic=3741.msg34118#msg34118

LINK 5: http://forum.itsan.org/index.php?topic=4859.msg41403#msg41403

Finally, both Forbes and the New York Times published editorials about the drug. They cited the cost at $37,000 per year. They made no comments about the efficacy of the drug. This is outrageous.

Dupilumab Study – Are Eczema Patients Being ‘duped’ Again?

By | April 4th, 2017|Categories: Dupilumab|

My most recent postings have dissected the protocol, the patients, the methods and the fine print of the Dupilumab studies reported in the medical literature. Severe failings are evident in all the above criteria. What, therefore can we expect from the results and conclusions? This assessment will group together all Dupilumab studies.

My findings are:

  1. 25% of both the placebo and the drug group needed corticosteroid rescue – how much? – how often? This defeats any positivity to the study drug – they were addicted to steroids, not bad eczema patients.
  2. All the evaluated criteria were subjective – no scientific, well-controlled, objective criteria were used in the studies. This is the lowest kind of scientific study – studies of vitamins, acupuncture, supplements, and usually worthless drugs are vilified by the medical establishment for this kind of approach and reporting.

    The parameters discussed were:

    1. Itching
    2. Depression
    3. Anxiety
    4. Functioning – quality of life
    5. “How do you feel?”

     
    Good researchers know that this type of reporting is very suspect. All subject patients want to please the investigators. Placebo control patients do not obviate this concern about double bland controlled studies.

  3. There are lists after lists of statistical numbers that the average medical reader finds difficult to […]

Dupilumab – Does the Drug Work?

By | April 3rd, 2017|Categories: Dupilumab|

The Dupilumab studies as reported in the New England Journal of Medicine and the Journal of the American Academy of Dermatology and by me on discussed in my four prior posts exhibit multiple violations in the study of new drugs and scientific reporting.

  1. Inclusion of patients: from my experience with 4000 totally similar patients none of those admitted into the study were ‘bad eczema’ patients, they were all corticosteroid addicted atopic dermatitis patients. The wrongly named patients were being studied. In my 4000 patient experience there is no such thing as ‘bad, prolonged, chronic eczema.’ The on-going skin problem was all driven by steroids. 
  2. Multiple centers with multiple researchers were involved in the study. In the NEJM article 25 investigators are listed. They were allowed under their personal discretion to give steroids to flaring patients. Twenty- five subjective researchers were upsetting a supposed objective study? The protocol was set up this way because the researchers could not enroll ‘clean’ atopic dermatitis patients. To repeat the steroids were the driving force in the ongoing skin problem.
  3. The criteria to ascertain differences between drug and placebo were all […]