Red Skin Syndrome: Stop The Suffering

A continual avalanche of new and long-suffering “eczema” patients who have found me over the Internet has prompted me to begin a new website and daily blog. The simple fact is that these patients are unique and identifiable through many simple and time-tested methods. They do NOT have eczema but instead are manifesting symptoms of another kind.

The doctors that these patients have seen believe that they are treating chronic eczema when indeed they do not recognize that their patients have severe vasodilation and redness from the steroids that they themselves are prescribing! Their patients have developed Red Skin Syndrome (RSS) and a topical steroid addiction (TSA) from using the increasing amounts and strengths of the corticosteroids prescribed to help them.

The time has come for eczema societies and physicians to stop exposing these patients to dangerous misguided therapies.

I will dismiss detrimental recommendations, invalid explanations, and other faulty advice and on the part of many physicians.

I will discuss the appropriate methods to make the right diagnosis that will lead to a CURE for Red Skin Syndrome.

The blog will be based on my life experience and medical practice solving the problem of Red Skin Syndrome one patient at a time over the past 35 years. The content of each blog will address a specific topic in the scientific understanding of Red Skin Syndrome and the ordeal of topical steroid addiction that so many patients continue to experience. There will be ongoing commentary on the misdirected myths and the often misguided medical advice and therapies that exist on the topic including raising caution about enlisting patients into new drug studies that are treating the wrong diagnosis and can potentially cause even more harm to patients.

My goal is to end the current tragedy of needless patient suffering. It may take the patient months or even years to recover but the reward is a lasting cure.

DIAGNOSES & DERMATOLOGICAL TERMS CONCERNING ‘RED’ PATIENTS

  • Red Skin Syndrome
  • RSS (Red Skin Syndrome)
  • TSA (Topical Steroid Addiction)
  • Steroid Addiction
  • Steroid Withdrawal
  • Eczema
  • Atopic Dermatitis
  • Red Scrotum Syndrome
  • Vulvodynia (Painful & burning in the vulvar area of women)
  • Atrophoderma (Thinning of the skin)
Marvin Rapaport is the man!, this group wouldn’t exist without his work, no-one would even be aware of the condition if it wasn’t for his expert knowledgable and dedication… He’s the best dermatologist to go to about this. Should be given a medal for all the suffering he’s ended as a result of his discoveries. No one else understands this condition more than he does.
Douglas Maddy
Thank you from the bottom our families hearts for the work you do and the help you provide Rss sufferers. My daughter is fully healed and would never be living the like she is now with out the Rss community and your involvement in that. Today she turned 7 and has perfect skin and is able to enjoy being eczema free.
Kirsten Lyle
Despite lectures to dermatologists and papers published in the most prestigious Dermatology journals, the mainstream medical community will not accept the concept that it is their medical therapy that causes and promotes Red Skin Syndrome. Instead, they continue to mislabel the disorder and insist that “chronic eczema” is an incurable condition. I am determined through my blog, the media, and the numerous cured patients to take this concept into mainstream thinking.
Listening to my patients, understanding their plight, adhering to the sound tenets of my medical training, and abiding by the wise counsel of my mentors to embrace new ideas is the way to practice good medicine.
The blog will be based on my life experience and medical practice solving the problem of Red Skin Syndrome one patient at a time over the past 35 years. The content of each blog will address a specific topic in the scientific understanding of Red Skin Syndrome and the ordeal of topical steroid addiction that so many patients continue to experience.
My goal is to eradicate Red Skin Syndrome by curing those suffering RSS patients with whom I have personal contact and by spreading this science to all those who are too distant via technology.
The man who goes alone can start today; but he who travels with another must wait until that other is ready, and it may be a long time before they get off.

― Henry David Thoreau

Latest From The Blog

Every three or four days I will publish new commentary on the blog. Drawing on 35 years of experience treating patients suffering with Red Skin Syndrome I will include an array of patient histories, photographs, patient stories in their own words, appropriate comments from the dermatology literature, and details on physicians in the world who understand this problem and are willing to help. I know that you will find yourself and your tale on these pages and I am confident that you will find the cure that will end your suffering. Every patient that I have seen, over 3,000 in 35 years, has been cured or is on the road to recovery. I look forward to this adventure together.

Curiouser & Curiouser – Part 2

By | August 16th, 2017|Categories: Topical Steroid Withdrawal|

The curiouser part unfolds as we examine the lecture – never given before in 30 years – that recommends steroids need to be handled, applied, tapered, and used very carefully. There is no mention of my 35 years of clinical observations concerning addiction to corticosteroids. The information that withdrawal from corticosteroids is the cure for steroid addiction and the resulting Red Skin Syndrome (not bad eczema) has been withheld. Why?

Could it be that a new more profitable product is going to be introduced into the marketplace to replace steroids as the recommended therapy for the non-entity “bad eczema” with NEA support? This is becoming curiouser and curiouser. Citing no long term benefits and no mention of side effects, just the Sanofi Genzyme and Regeneron logos emblazoned on the NEA website with requests for donations to the NEA, the new product Dupilumab is being promoted by the NEA. The NEA has become the advertising agency for unnecessary drugs provided by the pharmaceutical companies that support the NEA. Ignoring legitimate studies that say withdrawal is the cure, the NEA is telling unsuspecting suffering patients about Dupilumab with the caveat that these meds are all tested, proven and “ask your doctor for them” […]

Curiouser & Curiouser – Part 1

By | August 14th, 2017|Categories: Topical Steroid Withdrawal|

The National Eczema Association (NEA) has adopted an Alice in Wonderland approach to steroid addiction.

The NEA recently advertised a free webinar presentation to be viewed on August 23rd. The RN spokesperson will discuss how to “safely” start and taper off steroids. After 30 years of nonstop steroid advocacy, their published papers stating that addiction to steroids is a rare event and a probable byproduct of patient misuse, the NEA has decided on a “new” adventure – withdrawal.

Like Alice in Wonderland jumping into the rabbit hole of unreality the NEA task force consisting of Drs. Hajar, Leshem, Hanifin, Paller and Simpson among others has the audacity to present withdrawal as a “new” protocol. The papers cited fail to include my peer reviewed published papers of 1500 cured steroid addicted patients. The tyrant Queen of Hearts was at work not to inform their fellow physicians of the most august paper in the literature on the subject.

The donating steroid drug companies would not appreciate the truth. Instead, the mercury addled brain of the Mad Hatter must have helped write the NEA papers citing poor paper after paper from the most obscure sources as evidence that the addiction entity is no big deal. In […]

How Many More Therapies Are Needed for “Bad Eczema?” NONE

By | July 24th, 2017|Categories: RSS|

When is enough enough? Apparently Never for Big-Pharma. I have counted 11 useless therapies for the non-entity “bad eczema.“ These patients do not have “bad eczema” they are misdiagnosed Red Skin Syndrome (RSS) sufferers. Cure is already available but a curative treatment is only possible with a correct diagnosis.

RSS patients are constantly and consistently misdiagnosed as having “bad eczema.” In fact they do not have eczema, they are steroid addicted from the topical steroids they have been mistreated with for extended lengths of time. They may have started with simple eczema which would have burned itself out if left untreated – but the topical steroids they were prescribed resulted in steroid addiction that developed into RSS. These patients no longer manifest the signs or symptoms of typical eczema because they no longer have eczema – they have RSS.

The multiplicity of ineffective therapies exposes the severe suffering of the RSS patients and the obvious inability of the medical profession to make the proper diagnosis. What are the therapies?

1. More steroids, stronger steroids, more potent steroids, and more frequent steroids – all still ineffective after all these years but still “honored“ as the gold standard.

2. Elidel cream and Protopic ointment – very […]

Why More Studies?

By | July 19th, 2017|Categories: Red Skin Syndrome, Red Skin Syndrome Cures, RSS Patients|

A cured steroid addicted RSS patient forwarded the most recent advertisement from ITSAN to me. It is a call for patients to sign on to a study of RSS patients in Australia. It must be clarified for ITSAN that in appropriate medical parlance you do studies and lab tests when you do not have an answer to a medical problem or you want to change therapy. Otherwise the studies and tests have no medical value just the possibility of financial incentives. In this advertisement the appeal for donations on ITSAN’s cover page is problematic. What other study is needed when the answer and the cure is already known? It appears ITSAN is trying to keep itself relevant at the expense of suffering patients who are wrongly informed that “new data“ will be derived from the study.

I must inform those who do not know about the history and formation of ITSAN. A patient, Kelly Palace, flew to my LA office from Florida after reading my papers. She began the difficult topical steroid withdrawal protocol required to finally ease her suffering and together we formed ITSAN. The organization’s mission was to offer help, support, and information to the thousands of RSS patients […]

New Ideas

By | June 26th, 2017|Categories: Uncategorized|

Dr. John Sarno, 93, Dies; Best-Selling Author Tied Pain to Anxieties.

Like anyone in medicine, he did not have ALL the answers, but he had many. He is a true champion who listened to his patients, learned from them, and helped others because of them. He left the basic science research to others who proved many of his ideas to be correct. There are many examples of this in my own life.

I have a friend in Los Angeles, Dr. Marvin Rapaport, who is a dermatologist and treats “Red Skin Syndrome”. A painful itchy disease of the skin. Most Dermatologists treat this with topical steroids, which helps for the moment, but makes things worse in the long run. He posits that the steroids are part of the problem, and not the solution. He can cure the patients by removing ALL STEROIDS from their treatment regimen. The patients are miserable for days to weeks to months, but most are ultimately cured! Hopefully, one day, the medical community will come around.

My father was laughed at when, as a general surgeon, he would get his patients out of bed the day after surgery for intestinal and gall bladder removal. EVERYONE knew that a patient […]

Eucrisa – A New Cream For Eczema

By | April 19th, 2017|Categories: RSS|

A new topical medication, Eucrisa, for treating eczema has recently been approved by the FDA. With keen interest I read every word of the backup study and publication in the Journal of the American Academy of Dermatology concerning then named Opa-15406, a novel topical non-steroidal PDE4 inhibitor. The study included patients who had just recently stopped steroid usage but for only a short period of time. This makes me question the results of the study and the supposed efficacy of the medication.

In over 40 years of being the principal investigator in scores of drug studies I never seen nor participated in any study where both active and placebo groups ‘dropped out’ without any ready explanation. In the fine print of this study 25% of all subjects vanished. In any well-groomed, appropriately protocol proven study less than 2 or 3 patients drop. Why was there a huge percentage dropping out of this study? I strongly believe they were all steroid addicted patients, not true eczema and were in flares of their addiction.

This paper had charts, bar graphs, tables and numerous statistics that I found both confusing and totally misleading. Basically, in dissecting the data […]